Partnerships for patient organisations and advocates

Your community deserves a voice in research.

HopeStage collaborates with patient organisations, advocates and trusted voices to make mental health research easier to understand and more accessible.

Why collaborate?

Help research meet communities with more clarity and respect.

A partnership begins with shared purpose and clear boundaries—not access to a database, private group or list of potential participants.

01

Help your community understand research

Share accessible educational content and understandable study information without presenting participation as an obligation.

02

Give lived experience a voice

Contribute insight about participant needs, practical challenges and the language used to explain research.

03

Support informed decisions

Help people explore research opportunities with enough clarity to decide for themselves.

04

Create sustainable partnerships

Explore transparent funding, commissioned education and other mutually agreed collaborations where appropriate.

What a partnership looks like

A transparent choice at every step.

Your organisation retains the right to decline a project, limit its involvement and decide what access or communication is appropriate.

  1. 01

    We get to know your organisation

    We learn about your mission, community, boundaries and the kinds of work you would—or would not—consider.

  2. 02

    We identify a relevant study

    A possible project is shared with enough context for your organisation to assess relevance and fit.

  3. 03

    We review the information together

    We discuss the study, participant materials, practical implications, permissions and safeguards.

  4. 04

    You choose whether and how to collaborate

    Your organisation can decline, limit the scope or agree a clearly defined contribution.

  5. 05

    We review the experience

    After the activity, we review what was useful, what was difficult and what should change next time.

Our commitments

Trust requires more than good intentions.

Participation in clinical research is always voluntary. HopeStage supports communication and collaboration; sponsors, investigators and sites retain their regulatory and clinical responsibilities.

Independent choicebefore, during and after every project

Partnership opportunities

Different contributions for different communities.

Every partnership has its own objectives, permissions, deliverables and commercial arrangements.

01

Research awareness campaigns

02

Educational videos and webinars

03

Lived-experience feedback

04

Community information sessions

05

Responsible research promotion

06

Co-created educational resources

How collaboration becomes useful

Community insight can become practical support across the research journey.

A partnership can contribute to the information, language and resources people encounter before, during or after a study. HopeStage connects that work to participant-facing experiences and the research-team workflow without giving either party automatic access to member data.

01

Participant-facing experience

Approved education, study explanations and independent support links can help people understand their options and choose their own next step.

  • Accessible study information
  • Co-created educational resources
  • Practical participation guidance
  • Optional independent support links
02

Research-team workflow

The portal helps authorised teams manage referrals, organise follow-up and see the progress information they have recorded.

  • Approved content in one place
  • Tracked referral handoff
  • Organised follow-up
  • No automatic clinical decision-making

What a responsible partnership can produce

Language people understandQuestions answered earlierA clearer route to the study teamSupport whether or not someone participatesLearning that can improve future communication

The organisation remains independent. Opening a support link does not transfer a person’s study identity, contact details or records to the nonprofit provider.

Collaboration and compensation

Fair, transparent and connected to agreed work.

Where appropriate, organisations or contributors may receive fair compensation for defined work such as content production, advisory activities or educational outreach.

Compensation is never promised for every collaboration and is not presented as a default commission tied to participant enrolment. Financial relationships must be transparent and compatible with the relevant ethical, contractual and regulatory requirements.

Independence

Your organisation remains yours.

Partner organisations retain control over whether they participate, what they communicate and what access they permit.

Always yours

Your mission, member relationships, communication channels, voice and final decision to participate.

Never assumed

Database access, private-community access, exclusivity, endorsement or permission to use your organisation’s logo.

A responsible next step

Let’s help more people understand clinical research.

Tell us about your organisation, your community and the kind of collaboration you would consider.

Explore a partnership